Vatican City, May 29, 2020 / 07:10 am (CNA).- The Vatican has published a free book online that can be a resource for parents facing a difficult or fatal diagnosis for their unborn child during pregnancy.
The nearly 300-page ebook is a compilation of speeches given at a Vatican conference held last year dedicated to the medical care and ministries that support families who receive a prenatal diagnosis indicating that their baby will likely die before or just after birth.
“Yes to Life: Caring for the precious gift of life in its frailness,” a conference organized by the Vatican Dicastery for Laity, Family, and Life in May 2019, brought together medical professionals, bioethicists, ministry providers, and families from 70 countries to discuss how best to provide medical, psychological, and emotional support for parents expecting a child with a life-limiting illness.
“Sometimes people ask me, what does perinatal hospice look like? And I answer, ‘It looks like love,’” author and mother Amy Kuebelbeck shared at the conference.
Kuebelbeck was 25 weeks pregnant when she received the diagnosis that her unborn son had an incurable heart defect. She carried her pregnancy to term and had a little more than two hours with her son, Gabriel, before he died after birth.
“It was one of the most profound experiences of my life,” Kuebelbeck said. She wrote a memoir of her experience of grief, loss, and love called Waiting with Gabriel: A Story of Cherishing a Baby’s Brief Life.
“I know that some people assume that continuing a pregnancy with a baby who will die is all for nothing. But it isn’t all for nothing. Parents can wait with their baby, protect their baby, and love their baby for as long as that baby is able to live. They can give that baby a peaceful life — and a peaceful goodbye. That’s not nothing. That is a gift,” Kuebelbeck wrote in Waiting with Gabriel.
Kuebelbeck’s testimony at the conference is included in the ebook in English, as is a transcript of the presentation provided by Dr. Byron Calhoun, a medical professor of obstetrics and gynecology, who first coined the term “perinatal hospice.”
Calhoun’s research has found that allowing parents of newborns with a terminal prenatal diagnosis the chance to be parents can result in less distress for the mother than pregnancy termination.
Other speeches from the conference are also published in Italian and Spanish, such Sister Giustina Olha Holubets’ Italian presentation. The Ukrainian religious sister, who works as a geneticist at the University of Lviv, helped to found “Imprint of Life,” a perinatal palliative care center in Ukraine.
“Imprint of Life” offers grief accompaniment, individualized birth plans, the sacrament of baptism, and burial, as well as respectful photos, footprints, and memory books to help families cherish their brief moments with their child. Their motto is “I cannot give more days to your life, but I can give more life to your days.”
There are now more than 300 hospitals, hospices, and ministries providing perinatal palliative care around the world.
Many families facing these diagnoses have to decide if they will seek extraordinary or disproportionate medical care for their child after birth.
According to the Catechism of the Catholic Church, “Discontinuing medical procedures that are burdensome, dangerous, extraordinary, or disproportionate to the expected outcome can be legitimate; it is the refusal of ‘overzealous’ treatment. Here one does not will to cause death; one’s inability to impede it is merely accepted.”
Ministries like Alexandra’s House, a perinatal hospice in Kansas City, Missouri, provide counsel and grief support to parents as they face these difficult medical decisions. They also connect families with a network of other parents who have had a terminal prenatal diagnosis.
“Most of the families stay in contact indefinitely,” said MaryCarroll Sullivan, nurse and bioethics adviser for the ministry.
The book, published by the Vatican’s Publishing House, includes Pope Francis’ speech from his meeting with the conference participants in the Vatican’s Apostolic Palace.
In this speech, Pope Francis said that selective abortion of the disabled is the “expression of an inhumane eugenic mentality that deprives families of the chance to accept, embrace and love the weakest of their children.”
“Fear and hostility towards disability often lead to the choice of abortion, presenting it as a practice of ‘prevention,’” the pope said on May 25, 2019.
Pope Francis also thanked the perinatal hospice providers for creating “networks of love” to which couples can turn to receive accompaniment with the undeniable practical, human, and spiritual difficulties they face.
“Your witness of love is a gift to the world,” he said.
“Caring for these children helps parents to process their mourning and to understand it not only as loss, but also as a stage in a journey travelled together. They will have had the opportunity to love their child, and that child will remain in their memory forever,” Pope Francis said.
“Those few hours in which a mother can cradle her child in her arms leave an unforgettable trace in her heart.”
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If the Pope gets to decide from afar, what role in worship does the local Ordinate have? Does he just enforce the dictates of the Pope or does he not have a say over the manner in which his flock engages Our Lord in the Holy Sacrifice of the Mass? I understand he has charge over catechesis, confirmation and ordination; but, does he not also form the conscience of the flock under his care? I feel pity for any Bishop who wishes to grow his flock, instill right worship and true devotion and ONLY have one tool in his tool chest with with to accomplish his task: the NO Missae of Paul VI.
Every bishop of a diocese is a successor to an apostle and is sole the sole authority in his diocese. No bishop or Pope can in anway impose their personal views or opinions on any bishop/apostle of a diocese. Pope Francis is going way beyond his role as the successor of Peter.
There can be honest disagreement about the direction in which PF is leading the Church, but this tendency to micro-manage the bishops is surely unsettling to the liberal mind.
Fortunately, in my diocese we are ignoring Traditionis Custodes. And should things get uglier after April 3, plans are already being made to continue with the TLM with a diocesan priest and a real church location. The octogenarian modernists have already lost. They just don’t realize it yet, so blinded are they by envy and hate.
You’re a schismatic. Your bishop does not have the authority to ignore TC. Stop making an idol out of the TLM and start being Catholic.
Dear Friend,
When was the last time you attended a solemn high mass? When was the last time you knelt at the altar of the communion rail to receive Our Lord and do your part to finalize the oblation? When did you last gaze at the pews full of well dressed, well behaved young people, sitting with their (many) siblings and parents attentively “assisting” in the holy offering? Tell me, Friend, when did you last walk into a Catholic Church and NOT fear trampling on the precious body of Our Lord and savior? Every piece, every fraction, every fragment is the WHOLE of His body. He gets handed out like a carnival ticket in the NO Missae. I’ve seen fragments get trampled, or nearly so, because of insensitive, haughty and arrogant, modernist “Catholics” who don’t even believe in the Real Presence. The abuses are plain scandalous and shocking. Do a deep dive this Lent like I did 2 years ago when my local NO priest shut us out of the church for fear of a cold virus. Seek out that which you condemn and go. Study the counsel and its deeply jaded and nefarious players. Start with Michael Davies. He’s a good place to start. God bless. Don’t condemn. God is at the TLM. MAKE NO MISTAKE ABOUT IT.
Right, Mr. Tabish. Turning my back on the NO in 2018, I’ve never looked back except to lament the loss of God’s people still stuck there.
Scooter is correct. Pope Francis’ order may be mean-spirited, it may be vicious, it may be malevolent, it may be intended to damage the church–but it is also unquestionably lawful and proper for the pope to approve or disapprove of any liturgical format he sees fit, whether from worthy or unworthy motives. He may have adopted a double standard in dealing with the heterodox, whom he favors, and the orthodox, whom he detests. It does not matter. A lawful order is a lawful order. It doesn’t have to be nice. It doesn’t have to please our sensibilities in order to demand our obedience. Francis has as much right to suppress the TLM as Pope St. Pius V did to suppress many pre-Trenten liturgies, which he did do at the same time he issued the prototype of the Tridentine Mass. If Francis were to order bishops and priests to hold church “weddings” for same-sex couples, that order would have to be defied because it would be an unlawful, immoral order which seeks to overturn the natural law, something no man or woman can do, least of all the pope. But this does not do that. It has been said by some saints that Christ values obedience to the lawful exercise of proper church authority by duly empowered actors above all else, regardless of whether that authority is exercised in a wise or kind manner. Perhaps this is a test of obedience to and by Christ. If so, then anyone who counsels defiance of the order is failing that test. “Scooter Toloody” has said what needs to be said. Francis has as much right to crack down on the TLM as Benedict did to widen its use.
Actually it is not lawful. Read the documents of VII and consult a Canon Lawyer.
Mr. Norton, if you care to read Pius V’s document Quo Primum you will quickly conclude that Pope Francis does not have the legal authority to dispense with the TLM. It is very clear.
It is an unlawful order. The Pope does not own the Church. It is not his possession or plaything. He is charged with preserving the Church, instructing the Church in Truth, not in falsehoods. By your logic, the Pope would be within his authority to outlaw the praying of the rosary. This is extent that papolatry has reached in our era.
Bishops chose to ignore the Vatican regarding the blessing of same sex relationships, yet no one screams schism at them. Communion on the hand was banned by the Vatican, but many Bishops ignored that too. The latin mass was never banned, indeed it can never be banned as the Trent declared an anathema on anyone, including a Pope who alters or bans it.
When the Holy See is schismatic, how can defiance of its anti-canonical actions be schismatic? Not everyone idolizes clown and tango Masses like Francis, nor do they value his mendacity.
How rigid of you!.
Just like Our Lord asks of we Eye pluckers. Love your satire.
Not concerned about the pronouncements of Pope Scooter.
What is significant about April 3″
Rumours abound that on that date there will be issued tighter still restrictions on the TLM.
But go to the Rorate Caeli website where it is strongly averred that PF is losing interest in the liturgy war.
Pope Francis has also confirmed, through his lack of any disciplinary actions taken against the ‘dirty schism’ German Bishops, that if you want to perform immoral acts in the Catholic Mass, go to a Progressive Catholic Church in Germany to do so. Pope Francis confirms that you do not need any Vatican permission to do so.
For crying out loud, it’s time for traditional Catholics to practice the same manner of noncompliance that the DemoCatholics already do to support abortion, same-sex deviancy and whatever other demon driven things they allow for.
Scooter Toloody,
Name-calling… the blunt instrument of thoughtless, last ditch argument. Your judgmental and mean-spirited posting is perfectively representative of Pope Francis and his ilk. Congratulations. A little charity ( and humility) on your part would go a long way.
I suggest you follow Mr. Tabish’s soul-saving advice and get to know that which you condemn. I pray for you to find peace of soul.
Is the letter of Pope Francis’, Guardian of Tradition, a magistrial teaching or simply his personal view point as regards the latin liturgy? Clarification is needed in order to stop all the disunity that is prevailing by this issue.
There can be honest disagreement about the direction in which PF is leading the Church, but this tendency to micro-manage the bishops is surely unsettling to the liberal mind.
What previous generations considered sacred remains sacred and can not be abrogated. The problem within the church is the laity are informed of the dubious formation of the Novus ordo, and the manipulation by its designer (Fr.Bugnini). Young Catholics are attracted to the consistent celebration of the tlm, and the spiritual depth of its customs. Young priests are attracted to its direction of prayers to the sacrifice of Christ to the heavenly Father. The Vatican must be aware of the abuses within the N.O, and foster with the bishops an authentic celebration of the N.O ad orientem with the use of some Latin with gregorian chant. Right now priests are celebrating without consistent guidance. Draconian leadership will only foster more strife and confusion within the ranks.