Canadian man receives assisted death after funding cut for in-home care

August 16, 2019 CNA Daily News 3

Vancouver, Canada, Aug 16, 2019 / 04:00 pm (CNA).- The family of a Canadian man who suffered from amyotrophic lateral sclerosis (ALS) is urging the country’s government to change the way it treats patients with the disease after he received a “medically-assisted death” following years of struggle to find adequate care. 

Sean Tagert, 41, was diagnosed with ALS, also known as Lou Gherig’s disease, in March of 2013. In October 2017, he suffered cardiac arrest, and was subsequently placed on a ventilator. His illness robbed him of the ability to move his body, eat, or speak, and he communicated via an eye-gaze computer. His mental acuity was unaffected. 

At that time, Tagert’s doctors recommended 24-hour in-home care, which is typical for a person who uses a ventilator full time. Vancouver Coastal Health, Tagert’s regional health authority, only initially offered 15.5 hours of care a day. Eventually, after much effort, they increased their offer to 20 hours a day–which still meant that Tagert had to pay $263.50 each day for the remaining four hours of required care. 

Tagert and his family continued to fight for coverage of a full day’s care, to no avail. 

“Hey everyone. I’ve been quiet lately because I’m just done, worn-out,” wrote Tagert in a July 25 post on his Facebook page. 

“So last Friday I officially submitted my Medically assisted death paperwork, with lawyers and doctors, everything in proper order. It’s been over a month since I submitted my appeal to the Vancouver Coastal Health patient care quality department. They didn’t even respond.”

Tagert went on to explain that earlier in the day, two Vancouver Coastal Health officials came to his home, and had refused to talk to him when they realized he was recording the conversation. Eventually, they told his mother that they were there to cut his funding for care hours. 

“Welcome to the great Canadian Healthcare system people,” said Tagert. 

On August 6, he received a “medically-assisted death” and passed away. In Canada, patients over the age of 18 who have been diagnosed with a terminal illness are able to apply for a “medically-assisted death.” The lethal medication can either be self-administered, or, as it is in the vast majority of cases in the country, administered by a doctor. 

Full funding for the procedure is available, and is advertised in hospitals around Canada.

“We would ask, on Sean’s behalf, that the government recognize the serious problems in its treatment of ALS patients and their families, and find real solutions for those already suffering unimaginably,” reads a post on his Facebook page announcing his passing. 

The post outlined the difficulties he endured to remain in his own home.  

“Ensuring consistent care was a constant struggle and source of stress for Sean as a patient,” said the post. 

“While he succeeded, with the help of many, in piecing together a suitable care facility in his own home (including an expensive saliva-suction machine, needed to prevent him from choking, obtained with the help of donations raised online), gaining the 24-hour care he required was extremely difficult, especially as the provincial government refused to fully fund home care.” 

Going to a nursing home was not an option, said the post, as the facilities in his province “would have offered vastly inferior care while separating him from his family, and likely would have hastened his death.”  Tagert had partial custody of his 11-year-old son, Aidan. 

“Above all else Sean was devoted to his son,” said the post.

“Sean often said that Aidan was his reason for living, and had a close relationship with him right to the end.” 

Since Tagert’s death, Canadian commentators and palliative care physicians have called for changes in the way the country’s health system handles patients with complicated health needs. 

“No one should have to feel death is the only option due to lack of care,” Dr. Leonie Herx, a palliative care physician from Toronto, said on Twitter. 

Herx pointed out the paradox that presently, Canadians have a “right” to medically-assisted dying, but not to palliative and disability care. 

“We must do better for vulnerable Canadians,” she said. 

The ALS Society of Canada was unavailable to comment specifically on Tagert’s case, but CNA was provided with a statement from CEO Tammy Moore saying “People living with ALS must have access to the appropriate personal care supports and palliative care to meet their needs.” 

Medically-assisted death is fully funded in the Canadian healthcare system.

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Iraqi church formerly defaced by ISIS rededicated on Assumption feast

August 16, 2019 CNA Daily News 0

Qaraqosh, Iraq, Aug 16, 2019 / 05:23 am (CNA).- An Iraqi church damaged and defaced by the Islamic State in 2014 was rededicated Thursday for the parish’s celebration of the Feast of the Assumption of Mary.

The Syriac Catholic Church of Mar Behnam and Mart Sarah in the Iraqi city of Qaraqosh welcomed Archbishop Petros Mouche of Mosul, priests, and the local Catholic community to celebrate the solemnity.

Archbishop Mouche rededicated the church’s altar, which had been burned by the Islamic State. After renonvations and rebuilding, the interior of the church, once charred black by fire, has been painted white.

“All these people do not see the community reborn only as stones, but as faith around Christ who is celebrated in the Resurrection. So the Resurrection of Christ is the resurrection of the community itself that goes on. Our community has about 800 families,” Fr. George Jahola told Vatican News in an interview published Aug. 15.

Five years ago on the August Feast of the Transfiguration, the Islamic State devastated the city of Qaraqosh in Iraq’s Nineveh Plains causing Christians to flee the region.

“In 2014 we left our churches and our homes. The city had about 50,000 Christian inhabitants,” Fr. Jahola said.

Now the Christian population in the city has been reduced to half of what it was. About 26,000 Christians have returned to Qaraqosh, Jahola explained.

During their occupation, the Islamic State desecrated the churches in Qaraqosh, in some cases writing battle instructions on church walls. St. George’s Syrian Catholic Church was turned into a bomb factory and used as storage for supplies of deadly chemicals to make powerful explosives. The church of the Immaculate Conception was used as an indoor shooting range with mannequins as targets, according to Aid to the Church in Need.

The Church of Mar Behnam and Mart Sarah was charred black and its bell tower was demolished. “But we never stopped imagining how beautiful our church would be, once fixed,” Fr. Jahola said.

Christmas Mass was celebrated in the church in Dec. 2018 during the church’s reconstruction. The bell tower was rebuilt in 2019.

“We started the reconstruction project even before the liberation of the city, in the Nineveh Plains, when we were refugees,” he said. “We have worked to rebuild houses and communities as believers, because this is the sense of belonging both to a parish and to a community.”

ISIS was driven from Mosul in 2017, and the last remaining town of the original caliphate in Syria fell earlier this year. However many Christians who fled the ISIS onslaught in 2014 have not returned to their homes in Mosul and the Nineveh region.

Although the territorial ISIS caliphate is gone, security threats to Christians and Yazidis in the region remain. There are up to 15,000 ISIS fighters estimated to have remained in Iraq, according to the U.S. Commission on International Religious Freedom (USCIRF).

Christianity has been present in the Nineveh plain in Iraq – between Mosul and Iraqi Kurdistan – since the first century.

“What we have learned from the Gospel, from the Lord, is to be instruments of peace, and also to live peace,” Fr. Jahola said.

“We try in every way to realize it here, where the majority is Muslim, where there is still someone who still bears hatred. We truly believe in this, in forgiveness and in leaving the past behind to continue towards the future,” he said.

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International scholars express concerns about John Paul II Institute

August 15, 2019 CNA Daily News 1

Vatican City, Aug 15, 2019 / 04:17 pm (CNA).- A group of 49 academics from universities around the world has asked the administrators of the Pontifical John Paul II Institute in Rome to reinstate several faculty members recently dismissed from the institute.

Contributors to the recently completed Dizionario su Sesso, Amore e Fecondità, an interdisciplinary academic tome on sex, love, and fertility, expressed their view in an Aug. 3 letter to administrators of the institute.

The project, which involved scholars from multiple specializations, was coordinated by recently dismissed John Paul II Institute professor Fr. Jose Noriega.

The scholars said that their work on the project was “a very fruitful and professional scientific collaboration which has highlighted to us the outstanding academic profile of your institute as well as the great scientific and editorial competence of the main curator of the Dizionario, Professor José Noriega.”

“It is therefore with great distress that we learned the news about the sudden dismissals of two full professors, José Noriega and Livio Melina, together with other colleagues: Maria Luisa Di Pietro, Stanisław Grygiel, Monika Grygiel, Przemysław Kwiatkowski, and Vittorina Marini. All of them are scholars of outstanding international reputation and some of them have equally collaborated with us at the Dizionario,” they wrote.

“We cannot see any convincing reason – academic, doctrinal or disciplinary – which justifies their dismissal.”

“If your institute wants to maintain its high academic profile and international reputation, we ask you to revoke these dismissals and to reassume the aforementioned scholars among the faculty of your Institute,” the scholars concluded.

The letter comes during a period of controversy at the institute.

Last month, new statutes were approved for the institute, in response to a 2017 announcement that Pope Francis would legally refound the Institute, and broaden its academic curriculum, from a focus on the theology of marriage and the family to an approach that will also include the study of the family from the perspective of the social sciences.

After the new statutes designed to implement that vision were approved, students, alumni, and faculty raised concerns about the role of faculty members in the institute’s new governing structure, about the reduction of theology courses and the elimination of some theology disciplines, and about the dismissal of some faculty members, including Msgr. Livio Melina and Noriega.

Faculty members have told CNA they do not object to the pope’s desire to expand the school’s mission or approach, but say that the administrators responsible for implementing that mission have acted unfairly.

More than 250 students and alumni of Rome’s John Paul II Institute have signed a letter expressing their concern about the school’s new statutes, and the dismissal of Noriega and Melina. The letter expresses concern that current students will not be able to complete the academic programs in which they are currently enrolled, and the faculty dismissals have taken place without due process.

On July 31, Fr. Jose Granados, the Institute’s vice-president, told CNA that “the identity of the Institute is seriously threatened,” and called for administrators to resume discussion with faculty members about the approach to implementing Pope Francis’ call for an expansion of the school’s approach.

Earlier in July, the Institute’s president, Msgr. Pierangelo Sequeri, told Vatican News that that although some students have raised concerns about the Institute’s direction, others “have already written expressing confidence in the renewal and expansion of research and training in theological-pastoral and anthropological-cultural fields,” at the Institute.

Sequeri lamented the controversy surrounding changes to the Institute’s identity.

“The polemics, more or less malicious, that in this regard, try to involve the many students that look with trust to the project of a truly ‘Catholic’ knowledge and formation, obviously cultivate other interests. They are not the ones of John Paul II, not the ones of Pope Francis, not the ones of the Institute.”

Among the signatories to the letter are John Crosby, a professor of philosophy at Franciscan University of Steubenville; Ignacio de Ribera-Martin, an assistant professor at the School of Philosophy of the Catholic University of America; and Tracey Rowland, the St John Paul II Research Chair in Theology at Australia’s University of Notre Dame, Australia and member of the International Theological Commission.
 

 

 

 

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Labor Department rule aims to widen religious freedom protection for employers

August 15, 2019 CNA Daily News 0

Washington D.C., Aug 15, 2019 / 04:00 pm (CNA).- The Department of Labor announced Wednesday that it is considering a new rule that would allow federal contractors who identify as religious to hire employees based on faith and religious practice.

The new policy would expand a Johnson-era executive order protecting the rights of religious employers with federal government contracts to hire from within their religious group. 

The new proposal, announced August 14, the Department of Labor said the new policy “clarifies the scope and applications of the religious exemption contained in section 204(c) of Executive Order 11246.”  

Executive Order 11246 forbids federal contractors from engaging in discriminatory hiring on the basis “race, color, religion, sex, or national origin.” An exemption for religious-based employers allowed them legally to hire only people of a certain faith if they so choose, but the executive order did not fully define as to what “religious-based” meant. 

The proposed new rule takes steps to better define the term, saying that the “religious exemption covers not just churches but employers that are organized for a religious purpose, hold themselves out to the public as carrying out a religious purpose, and engage in exercise of religion consistent with, and in furtherance of, a religious purpose.” 

The new definition also includes companies that claim to be religious “in response to inquiries from a member of the public or a government entity.” 

Additionally, the new rule states that “employers can condition employment on acceptance of or adherence to religious tenets without sanction by the federal government,” meaning that a federal contractor can make hiring decisions based upon how devoutly an employee practices a certain religious faith. 

All companies are still barred from discriminating on other grounds. 

The Department of Labor cited recent Supreme Court cases, including Masterpiece Cakeshop v Colorado Civil Rights Commission and Hobby Lobby v. Burwell as having underscored constitutional religious freedom protections.

Acting U.S. Secretary of Labor Patrick Pizzella said in a released statement that “As people of faith with deeply held religious beliefs are making decisions on whether to participate in federal contracting, they deserve [a] clear understanding of their obligations and protections under the law.” 

About a quarter of workers in the United States are employed by a company that is contracted with the federal government. 

LGBT-rights activist groups like the Human Rights Campaign, who called the change a “license to discriminate,” came out strongly against the policy shift.

Louise Melling, acting deputy legal director of the American Civil Liberties Union told a press call that the rule was “just the most recent in an ever-lengthening list of actions by this administration to authorize discrimination in name of religion.”

The White House responded to the criticism in a statement Wednesday, saying “In no way does today’s announcement by the Department of Labor undermine the President’s promise and commitment to the LGBTQ community.” 

“The proposed rule will continue to responsibly protect religious freedom and members of the LGBTQ community from discrimination,” the statement said.

While some activist groups have criticized the new rule as a license for widespread discrimination, Luke Goodrich, senior counsel and vice president of the Becket Fund for Religious Liberty, told CNA that he believes the policy is a far from controversial. 

“When a religious group hires people of the same religion to carry out their mission, it’s not ‘discrimination,’ it’s common sense,” Goodrich told CNA. 

“And when the government refuses to work with religious groups that do the best job of caring for the needy, it’s not ‘equality,’ it’s nonsense,” he added. 

The new rule is open for comment in the Federal Register until September 16.

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